
Let’s face it, managing finances or following a budget isn’t easy or enjoyable. But when the frequent and often unexpected medical expenses of a chronic illness start piling up, it quickly becomes clear that something needs to change.
From co-pays and lab tests to MRIs and sky-high medication costs, the financial burden of living with multiple sclerosis can feel impossible to manage. And if managing MS already feels like a full-time job, managing the cost of it might feel like an entirely separate one.
But here is the good news. There are practical, strategic ways to ease this burden. And yes, we will even talk about how to start bringing in income if your MS has impacted your ability to work full-time.
Drake’s Gift and the Reality for the Rest of Us
You may have seen the viral moment when rapper Drake paused his Toronto concert to offer to pay the medical expenses of a newly diagnosed fan. She held up a sign saying, “I just got diagnosed with MS, can you help me?” Drake not only said yes, but also shared that one of his close friends has lived with MS since 2005.
It was an incredible act of generosity. But for most of us, celebrity-funded medical care is not going to happen. And that is why we need real solutions to deal with the real cost of living with MS.
Step One: Create a Budget
If you do not already have a budget, now is the time.
This is not about tracking every penny to the point of stress. It is about gaining awareness and clarity so you can plan ahead.
Start small. Download a budgeting app, look at last month’s bank statement, or just organize expenses by category using a highlighter.
If it still feels overwhelming, consider meeting with a financial planner. Many communities offer free financial counseling at local nonprofit centers or places of worship.
Step Two: Look for Assistance Programs
Many drug manufacturers offer patient assistance programs specifically for MS patients. These programs often provide medications at a reduced cost or even for free, depending on your eligibility.
Ask your doctor or pharmacist about available options whenever you are prescribed something new. And be prepared for some paperwork. This is one of those moments where the short-term annoyance is well worth the long-term payoff.
Remember to recheck these programs regularly. Assistance options can change, and you may qualify for help at different stages of treatment.
Step Three: Set Up a Payment Plan
Medical providers know that most people cannot pay large bills all at once. Contact the billing department and ask about a payment plan. These are usually interest-free and allow you to pay in manageable monthly installments.
The key is communication. Let them know you want to pay and need flexibility to do so.
Step Four: Use FSAs and HSAs
Flexible Spending Accounts (FSAs) and Health Savings Accounts (HSAs) allow you to set aside pre-tax dollars specifically for medical expenses.
FSAs are typically employer-provided and have a use-it-or-lose-it policy, while HSAs are often tied to high-deductible health plans and roll over year to year.
Both can be used to pay for treatments, prescriptions, and even some alternative therapies. Having a dedicated card just for medical expenses can also make budgeting easier.
Step Five: Explore Earning Options with Chronic Illness
Now let’s talk about income. If MS has impacted your ability to work a traditional job, you are not alone. But that does not mean earning money is off the table.
One incredible resource is Patients Getting Paid, a membership program created by Kathy Reagan Young, an MS patient who found herself out of work and needing a new solution. The program helps people with chronic illness find flexible, work-from-home opportunities that allow them to manage their health and still earn money.
They offer:
- Lists of paid gigs including online surveys
- Training in marketable skills
- Support for starting your own business
You can learn more at patientsgettingpaid.com.
You might also consider turning a past career or hobby into freelance work. Were you a teacher? Try tutoring online. Love crafting? Open an Etsy shop. Have admin skills? Virtual assistant roles are in demand. The goal is to work smarter, not harder, and still generate income that supports your health and lifestyle.
It’s Tough But Possible
Managing the cost of multiple sclerosis is tough, but it is possible. From budgeting and financial aid to creative income opportunities, you have tools at your disposal.
You do not have to tackle it all at once. Start with one tip from this list and build from there. Every step you take is a move toward more control and peace of mind in your MS journey.
Want More Encouragement Like This? Tune into this week’s special episode of My MS Podcast:
🎧 S1E14: Managing the Cost of Multiple Sclerosis
Listen now to My MS Podcast
Let's face it, managing finances or following a budget isn't easy or fun, but when the frequent and often unexpected medical expenses of a chronic illness start rolling in, you quickly realize that you need to figure out something to cover all of these bills. It's overwhelming. There's the co-pays for what seemed like the endless stream of doctor's appointments, the cost for lab tests, MRIs, and don't even get me started on the astronomical cost of medication. If managing a chronic illness already didn’t feel like a full-time job, managing the expenses sure will. You need to figure out how to manage these expenses because finances shouldn't stand in the way of you receiving the care that you need. That's why today I'm diving deep into the best strategies to tackle the costs of living with a chronic illness. And make sure you stay until the end because I'm going to share with you a way that you
stable energy. The live challenge is happening now. Join us at Alenebrennan. com/ backslash focus. There are 1 million people diagnosed with multiple sclerosis in the US, so that makes you one in a million. And you have a special purpose in this world that no diagnosis can take away from you. So, if you're ready to reclaim your body.
Did you see the recent headlines about Drake? In case you missed it, Drake is a hip hop artist and at a recent concert of his in Toronto, he offered to cover the medical expenses of a fan newly diagnosed with multiple sclerosis. Could you imagine? You start your night excited to see your favorite artist perform live and you end your night knowing that all of your medical expenses for MS are paid for life.
This fan's medical expenses. Just a side note here, but I thought it was absolutely hilarious and so confirming that this person was newly diagnosed because when he shares that he's going to cover her medical expenses, she's obviously like excited. But then at the end, he tosses in two tickets to the following night's concert and her reaction seems more excited over the extra tickets than it did over the medical expenses. Which to me just so validated that she was newly diagnosed because she didn't fully realize the incredible gift that she had just received. But she was certainly so grateful for what he had just offered. And I mean, hearing this, don't we all wish that we were the ones standing there by that stage with that sign and having Drake cover our medical expenses for life? Unfortunately, most of us won't get that opportunity.
Dollars a year. That is more than most people make in a year. That is insane. And that's just speaking to conventional treatments. If you're listening to this podcast, you likely also have an interest in functional treatments or at least buying higher quality food and supplements, as well as getting treatments like acupuncture and massage. If that's the case for you, episode four is definitely one that you want to check out. The episode is all about how to build your dream MS wellness team without breaking the bank. That episode has tips on how to navigate more of the out-of-pocket expenses for functional and holistic treatments. So, give that episode a listen if you haven't already. Today, I want to talk about ways to manage your overall budget and manage the cost of.
Now, if this idea is already stressing you out, just start small. That's the key to starting any big goal that you have. Break the first step down to something that feels so easy, there's almost no excuse not to do it. I mean super small, like figuring out your login details to your online banking account. That can be your first step if you don't have your login details yet. Or Googling the top five budgeting apps that you can download to your phone to create an automated budget. Another great and easy way to get started is simply print out the previous month's bank statement and just see where you spent your money.
If this idea still feels like too much, see if you can connect with a financial planner who can help. There may even be free services at your local community center or church. But the bottom line is that you need to know where your money is being spent so you can make informed decisions about your medical expenses moving forward. Now let's explore an avenue that can help to alleviate some of this financial strain. Many pharmaceutical companies have patient assistance programs designed specifically for MS patients. These programs are designed to provide medications at a reduced cost or sometimes even for free if you qualify. Anytime that you're prescribed a new medication, always ask your doctor or pharmacist about any available patient assistance programs. They often have the most up-to-date information or can guide you to the right resources. So you may be asking, do I qualify for something like this? The eligibility criteria for these programs can vary. They may take into account factors such as your income, insurance coverage, and overall financial need. It's worth noting that even if you have insurance, you may still qualify for some programs, especially if your insurance doesn't cover the entirety of your medication cost. Typically, applying for these programs involves filling out an application. I know, even more paperwork. Oh, yay.
And just a heads up, your doctor may need to provide information as well. So just factor that into your timing. One last thing to keep in mind about these programs is that they change. A drug that's full price today might get a discount tomorrow. So check in every once in a while, especially if there's a change in your medications or your financial situation. Look, I know these programs aren't always easy. There's a lot of red tape and they require effort on your end, but this could be the difference between you being able to afford the medication that you need. So it's worth it. And if you need to ask a family member or a friend to help you fill it out, do it. People often want to help, but they don't know how. This is a great opportunity to receive that support.
You. Another avenue to explore in managing the cost of multiple sclerosis is the use of FSA or flexible spending accounts and HSAs or health savings accounts. Personally, I have found these to be so helpful in managing medical expenses over the years. FSAs and HSAs are basically specialized accounts that allow you to set aside pre-tax money to cover healthcare costs that insurance might not fully cover. Now, it's important to check your eligibility for these accounts. HSAs are often associated with higher deductible health plans, whereas FSAs are typically benefits that an employer provides.
Now, you can use the money in these accounts to cover not only doctor's visits, medications, but also services like physical therapy, over-the-counter medication, and even some alternative treatments. One important rule to remember with these accounts is this. FSAs typically have a use it or lose it policy by the end of the year. HSAs, on the other hand, you can typically roll over your money from year to year. That money, it's yours and it's yours to keep. So it's important to know what you have so that you can plan accordingly. Personally, I've always used an FSA account. And what I love about the experience is that you can allot a certain amount of money at the beginning of the year that you want to contribute. And that's gradually deducted from your paycheck throughout the course of the year.
At the time she was diagnosed with multiple sclerosis. But she soon realized she couldn't maintain both her job and her health. And eventually she lost her job. So her paycheck stopped coming in, but her medical expenses certainly didn't stop coming in. She needed to figure out a way to generate an income from home and in a way that she could manage her health. Well, the road to figuring this out was bumpy,
chronic illness, find ways to make money that offer flexible schedules so that you can take care of your bills and your health. Patients Getting Paid offers things such as a list of paid gigs, some as simple as a survey that you get paid to complete. She offers monthly trainings on skills that you can learn and potentially market. And if you're looking to start your own business, she has a ton of trainings and resources to help you get a business off the ground. If you're looking to make some extra cash to help offset your bills, but need something that is flexible, check out patientsgettingpaid. com and reach out to Kathy. She is an incredible resource to the MS community. Look, I know MS wasn't part of your plan. It wasn't for any of us. But when we are here in this moment, in this reality, we have to start creating the opportunities that are going to support us in living the best life with this illness. And this could be a great opportunity to start thinking outside of the box of creating different sources of revenue for you that will help to, again, offset some of these
Maybe this is the time to start considering selling some of your handmade items on a site like Etsy. And with all of the people starting online businesses these days, there is a huge demand for virtual assistants. So maybe that's your area of expertise. My point is that whether you're trying to replace your income or simply just have a little side gig to offset your medical expenses, there are a lot of creative ways and out-of-the-box options for you to consider.
Okay, my friends, that's a wrap for today. I hope that you found at least one tip here today that can help you make a difference in reclaiming your body, mind, and life from multiple sclerosis. Well, my friend, we've reached the end of this episode. Pick one lesson from today's discussion and put it into action now. It's time to reclaim your body, mind, and life from multiple sclerosis. And for more resources, events, and programs, head over to Alenebrennan. com. See you on the next episode of my MS podcast.
+ show Comments
- Hide Comments
add a comment